Blogging with Dr. Susan

 

Global Developmental Delay

Question: This is about an infant one year old with global developmental delay due to epilepsy from the age of three months. Complete control from 11 months. Sitting with support. Hearing sound well. Not responding by turning head toward the direction of sound. According to Docs seeing dim light and following light. Unable to recognize mother. 


 

Thank you so much for bringing this difficult situation to my attention and I will do my best to give you some tricks of the trade!  Take this information as if it were a long but worthwhile way of looking at your child’s temperament and think about experimental ways of finding  “your child” and your personality and the family they’re growing up in…..   You were a child once ….. Remember?  So take seriously and with compassion all aspects of how your child will need to learn and survive and be part of “family” regardless of the disability and confusion about what your child needs and the serious nature of what you are facing.   Professional helpers are also important through schools and Head Start and other day care and home care settings. Modify your concerns. Make YOU HAPPIER and more responsive to the infant in your life, and that infant who needed help with their arms and legs, poor head control can changes direction.  This is essential.  Do not wait.

Eye gazing, continuous touch, body holding and wrapping, shielding and speech-talk also help!  All these are important for your situation and I hope you will find the right person beside yourself to help with your concerns and your future enjoyment!  Watch and enjoy feeding for many reasons ...including eye gazing, head lifting, warmth and fun!  

Start out thinking, “all children have assets” and these assets must have internal controls that process in one way or another with the help of professionals and parents…unique characteristics…so infants have working temperaments with unique personalities and brain development over time.  Child development and accommodations for that development allow infants to start to learning and to think.

Physical love and attachment are critical to infant learning at all stages and ages… here are some examples:

SING! Yes, sing and talk.  Move your arms and legs on or near your child’s body, because this is one-way infants are attracted to looking around and making sounds and noises.  Even crying and cuddling are tactile surprises for infants with hearing.  You should ignore problems and focus on touch such as moving arms and legs, cuddling, talking and making eye contact!  There’s more too!  Body contact that feels motion relaxes their body and improves the urge to move around.  Make contact activities to encourage growth and increase images and sounds that stimulate the brain.  These things will help the child react to you, loving, comforting, but with difficulty ….it will become clear what  “existing behaviors” will mean for the future.  You might spend time writing down how your child reacts to all the ups and downs. Use quiet humming to keep calm and smile.   For severe disabilities, changing directions and movement along with changing positions is essential along with list of ways for family members to repeat sounds, hum, turn to the infant and gaze, turn child over and the same sounds each day, all times of the day and night, some humming, some self voices that are clear. Use the touch that everyone in fact needs, more or less constantly.  Wrapped, or unwrapped, touch coupled with cuddling or your own type of touch that is happy and gentle.  All of these things help facilitate an understanding between child and parent or caregiver.

 Keep moving your child’s body… a lot to deal with but it will be worth the happy thoughts and the attention received by your child or children!

 Finally the child will begin to listen, respond or even ignore.  Yes! Even ignore!  This is a good thing, so you keep on, making sounds, smiling and sitting back, and redirecting the activity the child so dearly needs!   Or move away and they will grunt or laugh and more.  It is important to start as soon as each child or children is diagnosed.  There are so many factors that you think you should do such as play and therapy engagement one day at a time, but that is not the case, instead there many parts, some coming and some going, and some to move and communicate!    

Many factors have to do with personality and movement, especially temperament, so the chances are great that you can enjoy your child and find good ways to encourage your child from a variety of movements and enhance movement and personality, behaviors, and much more.  Direct movement and other activities help enhance the chances that each child and parent, while learning, can find their way but it may take a long time so be patient. Families, like yours, are longing for help with their children so they can thrive and develop!

Good luck and I look forward to talking to you via email soon!  

Dr. Susan Turben
Turben Developmental Services


9 responses to Global Developmental Delay

  1. Debra
    September 17th, 2015 - 11:27am

    Hello, I have a 22 year old daughter that's blind and have a learning disability. I've always shelter my daughter from the bad in this world and keep her safe. With me doing so’ my daughter is very naive and lack common sense. She came to me after finishing ISVI and said the she wanted to move to an Assistant Living facility, because a few of her friend lives there. It was very hard for me to see things her way, until I talked to her friends and staff there, and I was assured that she will be in safe hands. A few months after living there, a man name Calvin (That’s been blind four years) calls me and said he loves my daughter, and it’s nothing you can do about it. She might be you daughter but she’s a woman to me. Also he stated he’s 54 years old, was divorced 4 years ago, have kids older then my daughter. He also goes into how he’s attracted to young women. If you try anything it will never hold up in court because she’s of age. This man has made my daughter stop all contact with family and friends. I’ve tried to contact her but she refuses to answer, or return them. I went to the Assistant Living facility to voice my concerns and my daughter wouldn’t talk unless he was present. Both of them denied everything about our previous phone conversation, needless to say he was doing most of the talking. I then ask him to leave the room, but she still wouldn’t say anything of value without him being there. I was told by the Assist Living Staff that my hands are tied; it’s nothing I can do because she’s of age, even if she has the mentality of an 11 year old. While I was leaving this building I bumped into her friend, and she informed me that this man tried to force himself on her, came into her room and she informed a CNA, that works there about the incident. An investigation was done and something was unclear, so it was dismissed. Another CNA notice this man was starting to show inappropriate behavior towards my daughter, so she confronted him, and said “it’s wrong what you’re doing to this girl’ she’s two years younger than myself”. He became offended and had this girl fired, for being concern about my daughter. I’m not sure what to do, was thinking about hiring an attorney so I can became her “Powers of a Guardian”

  2. Mazhar
    October 16th, 2015 - 5:52am

    March 2, 2011hi B Thank you so much for commenting on this site. Without care girves like yourself, many of our children would be even more delayed than they already are. Unfortunately, people with Down syndrome have dramatically different abilities and even though there is a perception that individuals with Down syndrome are sweet and have great attitudes all the time, that is of course a fallacy. It sounds like you are working with a VERY stubborn teenager who has a strong-willed and temperamental personality. She may have been exposed to behaviors that make her angry and certainly she is not acting appropriate. Those behaviors must be dealt with but it certainly is not your responsibility to take that on yourself. I suggest you work with her teachers and her special ed coordinator (if she has one) to develop an IEP that addresses her behavior issues. You should also develop a very specific curriculum and set of goals for her so she and you can realize incremental success and so you don't get so disenchanted with her apparent lack of progress. Remember, all individuals with Down syndrome have very different levels of abilities and the girl you work with may be at the lower end of a spectrum of course she may not but without an expert to evaluate, it will be difficult to know what she might accomplish going forward. Long story short, please try to find goals that are appropriate for her and work with others in your support circle to address the behavior issues. Once you begin to find some incremental success, even if it is very limited, you should both celebrate those wins and then move to another goal. Please come back and let us know how you are doing and of course, don't be dejected but also don't beat yourself up if it is difficult to make gains. Just do the best you can and then evaluate if you can do it anymore. Thanks for everything you do!Justin

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  4. Dane
    October 17th, 2015 - 7:19pm

    If we are talking about old scohol, kindergarden times then any and all of the Clifford the Big Red Dog books (partially because I alwasy wanted a dog and parents never let me). If we are going by elementary status then Where the Red Fern Grows (again partially because of my love of dogs. If we are talking middle scohol then the Ender's Game series, mainly for is philosophical innuendos. Good question. April 01, 2011 http://pupxziin.com [url=http://wppircruhyf.com]wppircruhyf[/url] [link=http://ktqparuq.com]ktqparuq[/link]

  5. Ashar
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  6. Billyjohn
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  9. Katia
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